Cape Branch

About Us

The Muscular Dystrophy Foundation of South Africa is a non-profit organization which supports people affected by muscular dystrophy and neuro-muscular disorders.

We assist affected persons and their families by providing workshops, support groups, access to genetic counselling, referrals to health facilities, providing assistive devices, funding dependant(providing assistive devices - funding dependant). Creating public awareness is another important aspect of the Foundation’s work.

Muscular Dystrophy (MD) is a group of muscle diseases that cause progressive skeletal muscle weakness, defects in muscle proteins, and the death of muscle cells and tissue. In muscular dystrophy, abnormal gene mutations interfere with the production of proteins needed to form healthy muscle which results in the hampering of physical movement.

There are many different kinds of muscular dystrophy with symptoms of the most common variety affecting mainly boys at the beginning of their childhood. Other types are known to not surface until adulthood.

As of 2016, no specific treatment or cure for muscular dystrophy is known, however good quality care – management is of supreme importance.

FAQ

What is Muscular Dystrophy?
The term muscular dystrophy (MD) describes a disorder that affects the muscles, resulting in progressive wasting and weakness of the muscles.

What are Neuro-Muscular Disorders?
These are disorders that not only affect the muscles but also affect the nervous system.

Who does it affect?
Individuals from both sexes, all ages and ethnic backgrounds can be affected by MD. This group of disorders affect approximately 1 in 1200 individuals.

What causes Muscular Dystrophy?
MD is generally inherited. A defect (mutation) in a gene, or genes, involved in normal muscle function can be passed on from one generation to the next. In some cases, MD can occur in families where there is no prior history of MD.

What are the symptoms?
Progressive muscle weakness and fatigue are common symptoms. This in turn, results in limited physical activities. Symptoms may appear at birth, in early childhood, or develop later in life.

Contact Us

For more information on Muscular Dystrophy, please feel free to contact us at: